It feels like forever since posting! Truth is, life has been quite busy these last 2 months and I have been doing well, for the most part! At this time, I am essentially off all my pills and supplements, except for probiotics and monolaurin. I’ll be honest, I should probably be doing some other things, but I am taking a break from it ALL for my own sanity.
I get asked a lot about how I am feeling and if I think it was worth it to go to Germany for treatment and “Did it work?!”.
- To answer the latter… YES. I believe treatment at St. Georg worked. I has changed my life and gave my body a chance at survival.
- As for the former, despite looking great, and mainly feeling much better, I do still have some symptoms but I do believe these are due to the damages that had developed during the decades of being sick.
I do not believe Lyme is still active in my system. The symptoms are more body pains (primarily neck and shoulders) and fluctuating anxiety. These symptoms are MUCH more manageable than before treatment at the Klinik. I am hoping over time these things will get better. But I know I need to do things on my end to help like, being stricter with my diet, possibly (actually) joining a gym, do more sauna sessions, etc.
I have autonomic re-testing scheduled this month and I am likely going to have the brain MRI with NeuroQuant re-done in the coming months. Looking forward to seeing the results and also a little bit nervous.
Last month, I was lucky to be able to travel to Florida and see Disney World! While we were in the parks we walked just about 20 miles per day!!! It was such a fun time and I seriously wish I could just be there always!!!
Walking at Disney was the most I have been able to walk since I was first diagnosed. I am grateful for Klinik St Georg and for everyone who has supported me throughout all of this.
ANYWAYS, I thought this meme was too funny to pass up on posting.
It’s not entirely relevant but for Me, the Plasmapheresis at Klinik St. Georg was the toughest part of my time at the Klinik in February.
So wanted to share this very spooky meme:
Living in the Lyme Light 
Hi Tommy, can you explain more about the plasmaphresis procedure, and why it was more challenging for you? Thanks.
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Hi Marie! For me, I’d say that the Plasmapheresis treatment was more a challenging than Hyperthermia because during that procedure, you are awake during that one and it’s a looong treatment with a long metal needle. I, thankfully, didn’t need the central port but keeping the arm straight for multiple hours can be quite painful and peeing in a bottle, while remaining still is damn near impossible.
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